A Survey of the Experience of Living with HIV+/AIDS from the Perspective of Ahvazi Women Focusing on Educational Needs and Empowerment: A Qualitative Study
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Background: In Iran, there is a significant increase in women living with HIV+/AIDS. In a cultural, social, and political context, educational and empowerment needs are still considered a challenging issue among these women. The purpose of this qualitative study was to examine the experience of living with HIV+/AIDS from the perspective of women in Ahvaz, Iran, focusing on educational needs and empowerment.
Methods: The present qualitative study was a descriptive phenomenology conducted in 2020. The research context included all educational, therapeutic, counseling, and support centers, governmental and non-governmental HIV/AIDS associations and institutions located in Ahvaz. The statistical population of the study included all women with HIV and AIDS. The study participants were selected using purposeful and snowball sampling method. Semi-structured open interviews (individual and face-to-face) were selected as the primary and central approach to data collection.
Results: The findings showed that the 5 identified themes of understanding the experience of focusing on educational needs and empowerment in women were severe suffering (shock, anger, resentment of the family and friends, and feelings of isolation), disapproval (prejudices, stereotypes, and taboos related to HIV in society, and feeling of lack of social support), insecurity in social and economic life (lack of readiness for cultural and social participation, equality or inequality in empowerment, assessing relationships based on economic criteria, and doubts about improving health), disrespect (disrespect for unique characteristics, and insult and slander), and hardship in protection (continuing to control health status information).
Conclusion: It can be concluded that the educational and empowerment needs of patients with AIDS/HIV+ should be taken into consideration. Mobilizing individuals, specialists, and providers of counseling and care services in different sectors to gain a better understanding of the complex nature of the phenomenon of non-compliance with the right to empowerment will be useful.
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Bhatta, D. N., & Liabsuetrakul, T. (2016). Social self-value intervention for empowerment of HIV infected people using antiretroviral treatment: a randomized controlled trial. BMC.Infect.Dis., 16, 272. doi:10.1186/s12879-016-1634-8 [doi];10.1186/s12879-016-1634-8 [pii]. Retrieved from PM:27287712
Caetano, J. A., & Pagliuca, L. M. (2006). Self-care and HIV/AIDS patients: nursing care systematization. Rev Lat.Am.Enfermagem., 14(3), 336-345. doi:S0104-11692006000300006 [pii];10.1590/s0104-11692006000300006 [doi]. Retrieved from PM:16926989
Deeks, S. G., Lewin, S. R., Ross, A. L., Ananworanich, J., Benkirane, M., Cannon, P. et al. (2016). International AIDS Society global scientific strategy: towards an HIV cure 2016. Nat.Med, 22(8), 839-850. doi:nm.4108 [pii];10.1038/nm.4108 [doi]. Retrieved from PM:27400264
Fargher, L. F., Antorcha-Pedemonte, R. R., Heredia Espinoza, V. Y., Blanton, R. E., Lopez Corral, A., Cook, R. A. et al. (2020). Wealth inequality, social stratification, and the built environment in Late Prehispanic Highland Mexico: A comparative analysis with special emphasis on Tlaxcallan. Journal of Anthropological Archaeology, 58, 101176.
Khani, H., Bidarmaghz, I. M., Majdi, M. R., Azadmarzabadi, E., Joharinia, S., Shakeri, M. (2012). Knowledge, attitude, beliefs, and practices to wards HIV/AIDS among Iranian high school students in the south coast area of the Caspian. International Journal of Public Health and Sustainable Development, 1(1), 1-11.
Kohan, S. H., Mohammadali Beygi, N., Fathizadeh, N., & Malbousizadeh, M. (2008). HIV positive women's living experiences. Iran J Nurs Midwifery Res, 13(4), 151-156.
Lesch, A., Swartz, L., Kagee, A., Moodley, K., Kafaar, Z., Myer, L. et al. (2007). Paediatric HIV/AIDS disclosure: towards a developmental and process-oriented approach. AIDS.Care, 19(6), 811-816. doi:779587803 [pii];10.1080/09540120601129301 [doi]. Retrieved from PM:17573602
MacLachlan, E. W., Potter, K., Hamunime, N., Shepard-Perry, M. G., Uusiku, J., Simwanza, R. et al. (2016). "We Are Now Free to Speak": Qualitative Evaluation of an Education and Empowerment Training for HIV Patients in Namibia. PLoS.One., 11(4), e0153042. doi:10.1371/journal.pone.0153042 [doi];PONE-D-15-49819 [pii]. Retrieved from PM:27054712
Ndlovu, U., Ion, A., & Carvalhal, A. (2010). "My children and my home": the most recent and challenging stressors of HIV-positive women. Arch Womens.Ment Health, 13(3), 215-222. doi:10.1007/s00737-010-0148-4 [doi]. Retrieved from PM:20182756
Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action. Soc.Sci Med, 57(1), 13-24. doi:S0277953602003040 [pii];10.1016/s0277-9536(02)00304-0 [doi]. Retrieved from PM:12753813
Razavi, P., Hajifathalian, K., Saeidi, B., Esmaeeli, D. G., Rasoulinejad, M., Hajiabdolbaghi, M. et al. (2012). Quality of life among persons with HIV/AIDS in Iran: Internal reliability and validity of an international instrument and associated factors. AIDS.Res Treat., 2012, 849406. doi:10.1155/2012/849406 [doi]. Retrieved from PM:22292116
Remien, R. H., & Rabkin, J. G. (2001). Psychological aspects of living with HIV disease: a primary care perspective. West J Med, 175(5), 332-335. doi:10.1136/ewjm.175.5.332 [doi]. Retrieved from PM:11694484
Rosenberg, D. (2018). Use of e-government services in a deeply divided society: A test and an extension of the social inequality hypotheses. New Media & Society, 21(2), 464-482.
van den Berg, J. J., Neilands, T. B., Johnson, M. O., Chen, B., & Saberi, P. (2016). Using path analysis to evaluate the healthcare empowerment model among persons living with HIV for antiretroviral therapy adherence. AIDS.Patient.Care STDS., 30(11), 497-505. doi:10.1089/apc.2016.0159 [doi]. Retrieved from PM:27849372
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